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11.05.2008

This I Believe

Have you heard of this website? It's a site where people post essays about what they believe. The subjects are vast and interesting. Oby's mom forwarded this essay to me, and I'm so glad she did! Not only do I love this essay, but I love the website and have found several other essays intriguing and relatable. The site is ThisIBelieve.Org. You should check it out!


I Am Capable of More Than I Think I Am


by Gregg Rogers

As heard on NPR's All Things Considered, September 22, 2008.


"It is Trisomy 21. It is Down Syndrome."


Beyond those words I heard nothing, sitting in the obstetrician's office. The doctor was talking about my unborn daughter, and the results of an amniocentesis. I know there were words after that statement, but I don't remember them. I do remember returning home with my wife and crying on the sofa. I distinctly remember saying, "I don't want this." I didn't want this situation. I didn't want this responsibility. I didn't want to become one of those parents—the parents of a child with a disability.


People told me, "If anyone can handle it, you can."


"Easy for you to say," I thought.


"God never gives you more than you can handle," they reassured me.


"Really? Then why do people have nervous breakdowns?"


"We'll help however we can," they said.


"Fine," I thought. "You have the kid with the developmental delay, and I'll help you out."


For months I was terrified. My wife Lucy and I now refer to the period of time leading up to my daughter's birth as "The Pit." We barely spoke to each other because we didn't know what to say. We simply suffered through each day, together, but feeling terribly alone. And then Genevieve was born.


She spent her first eight days in the neonatal intensive care unit at a regional medical center. On each of those eight days I made the 150-mile round trip to see her, because she was my daughter. I sat in a surgical gown in intensive care, holding her in a tangle of tubes and wires, singing the same songs I had sung to other daughters.


On the ninth day, she came home, and I began to realize that my feelings of fear and anxiety had changed in a way that no prenatal screening could ever have predicted.


I now believe Genevieve is here for everyone. I believe Genevieve is taking over the world, one heart at a time—beginning with mine. I believe that what was once our perceived damnation has now become our unexpected salvation.


Genevieve recently turned three and is doing very well for herself. She runs and climbs on everything and loves to wrestle with her two older sisters and her younger brother. She doesn't have a lot of spoken words yet, although her first full sentence turned out to be, "What's up with that?" She does have over 100 signs that allow her to ask for strawberries, pizza, or ice cream, or tell us when she wants to sleep or play on her computer. She goes to a regular preschool three days a week and seems to know more people around town than I do. I laugh every day because of Genevieve.


On my right wrist, I wear a simple silver chain with three little beads on it. I used to say the three beads signified the third chromosome that results in Trisomy 21, Down Syndrome. Now when I look at those beads, they simply remind me that I don't ever know as much as I think I do, but I'm always capable of more than I think I am.

12 comments:

Mrs. Bennett said...

I've read some of those essays before, and I think they are great. That one made me cry, thanks a lot! :)

Natalia said...

Absolutely beautiful.

Thank you for sharing it.

Ash said...

Wow - thank you so much for posting that. I will check out the rest of the site.

Em

Mindy said...

That was a beautiful essay. Thank you for sharing it! I know several people with Down Syndrome kids and I have to say... it seems to me that they are born without the little thing in our brain that makes us feel grumpy and sad. They are so bright and sunny! They are so outgoing and friendly. They are so loving. And they help you to see the world in a different light.

nikkicrumpet said...

I will admit when I read the introduction to your post...my fingers got ready to scroll past it and just leave the comment I came to leave...which was how much I appreciated your comment on my last post. You were the voice of reason and intelligence and I am happy you left it. But then I started reading the story and I was captured. What a beautiful message.....What a lucky little girl..and what an amazing dad. Gosh the world can be a really awesome place sometimes!

Celine said...

How inspiring...Seriously, that was so touching!
It's hard to believe how people are discouraged at first but going through disabilities with such strength after all!
It never ceases to amaze me!

nikkicrumpet said...

Can I just say....YOU ARE MY HERO! your last post was REALLY good ... and made me smile. I appreciate you being there to prop me up...the onslaught was making me cranky lol. THANKS! more than you know.

Queenie Jeannie said...

OK, that made me cry! But in a good way. Thank you for sharing it!!

and...

"I'm a nut, I'm a nut, I'm a nut!!"

Crystal Rae said...

What a touching essay! I will definitely have to go to that website.

Jen Shults said...

That was beautiful. Thanks so much for sharing that.

Thanks so much for commenting on my blog for my SITS day. I appreciated everyone's sweet words.

Tyler and Shannon said...

Tara- that is beautiful. I just love your blog!

Kay Bratt said...

Very inspiring--- your daughter is a gift and the great thing is that you acknowledge that!

Just passing thru--

Kay