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11.23.2009

Join the Fight

I hate SMA, Spinal Muscular Atrophy.

Since I began my journey in the special needs blogging world, I have made many friends who are living just to fight SMA. I have learned that:

SMA is the #1 genetic killer of children.
Many people are unknowingly carriers of the gene that causes SMA.
Dramatic breakthroughs have recently been made in understanding how to cure SMA.
They are getting close to the cure.
They need support and funding to pass legislation to bring the cure about.
They need your support. They need everyone's support.

I have learned these things about SMA, so when our close friends let us know a few days ago that their precious daughter, Kenzi, had been diagnosed with SMA, my heart instantly broke.



This video was created by Gwendolyn's mom to help all of us learn what we can do to help those fighting SMA.



Join the fight.
PLEASE sign the petition HERE.

3 comments:

Diane said...

i signed the petition! <3

Grand Pooba said...

That just breaks my heart.

Kristina said...

I signed the petition. I hope they get the cure soon!