1.30.2011

The Upside of Being on the Underside

Is it just me, or did the weekend go by TOO FAST?!?!?

Oby and I started the weekend by going to see 127 Hours, one of the best films I've seen in a long time. I'm sure most of you know, but it's about the guy, Aron Ralston, whose arm was pinned by a rock in a slot canyon in 2003. He amputated his own arm with a simple tool and survived. Pretty amazing stuff.


I haven't been able to stop thinking about Aron Ralston and his dilemma ever since I saw the movie. Even though I knew the story well and knew how it would end, it surprised me what an impact watching the movie had on me. I thought about adversity in general and the tools we are given..... do we really use those tools to get through adversity, or do we let the adversity define us? And then I considered how it was the belief Aron had in his future (his son who was not yet born) that really motivated him to make the decisions and have the strength to get out of his situation. It got me thinking... Do I have that kind of faith in my future? Do I trust in my own "happy ending" enough to get through the tough moments, tough days? I couldn't help pondering these things after watching the movie and it made me want to dig a little deeper and live a little better. It touched me a lot.

Saturday I was invited to go to lunch with this amazing group of women. (Sorry for the poor picture quality!)

Eleah, Chrystal, Danielle, April, Me

I can't even begin to explain what a special group of women this is. I already know and love Chrystal and April, but I was grateful to meet Danielle and Eleah and to hear their amazing stories. We all have a special bond of love and gratitude for our special needs children. It was so touching for me to gain wisdom and strength from new friends. I could go on and on, but I'm not sure that they would want me to share much of their inspiring stories on my public blog, so I'll leave it at that.

On my way home from my lunch date, I was able to stop by my friend Molly's house and meet her new precious bundle, Miss Sylvie Gabriella.



*sigh* Can you just smell her baby skin? I could have snuggled her for days.

Molly still lives in the house where we were roommates. Well, officially she was my landlord I guess, but you get the idea. Molly asked if it was weird being in the house where I used to live, if it felt different or brought back memories. I replied no because I was just so caught up in snuggling Sylvie -- that was all I could take in at the moment, I guess.

But as I drove away, I started remembering all the years I spent in that home. The indescribable joys, the unbelievable heartaches, the laughter, the tears, successes, failures, good times and devastating blows.... You know how your 20's are, finding and defining yourself. For me, much of that was done in that house with Molly by my side.



And as I was driving home, I relived so much of what I experienced during that time. The faces, the feelings, the confusion and realizations.... they all came flooding to my memory like it had happened only yesterday. I had to laugh and smile in hindsight. To look back and see how every little experience built upon the other to lead me to who and where I am today. Not that who and where I am today is perfect, but it's lovely and I wouldn't want to trade it for the world. I wouldn't have wished many of my life experiences on myself. So thank goodness I'm not the one in charge because where would I be if I hadn't had those experiences? As I flashed back to this other time, it felt as though dots were connected, in a sense, and I was able to see the bigger picture. It was a moment of clarity of how much I truly need to trust in God's plan and allow my heart to trust that all of life's experiences will work together for my eternal gain. We have such limited perspective, you know? There needs to be much more trust in the divine.


My life is but a weaving between my God and me,
I do not choose the colors, He worketh steadily.
Oftimes He weaveth sorrow, and I in foolish pride,
Forget He sees the upper, and I the underside.

Not till the loom is silent, and shuttles cease to fly,
Will God unroll the canvas and explain the reason why.
The dark threads are as needful in the skillful Weaver's hand
As the threads of gold and silver in the pattern He has planned.


When I got home from this enlightening day with friends, I got to spend time with these two. My loves. I was so grateful for all the experiences I've had that led me to this special time with this little family of mine. I adore them. I love this life.





Chloe loves to squeal in public and gets louder and higher pitched the more you try to shush her. Oby is irreverent and full of surprises. They make me laugh and they make me happy. I may not choose all of our current circumstances and sometimes get discouraged because I want things to be different. Well, shame on me. One day, I know I will look back at this time and be grateful for every smile AND every tear.

“No pain that we suffer, no trial that we experience is wasted. It ministers to our education, to the development of such qualities as patience, faith, fortitude and humility. All that we suffer and all that we endure, especially when we endure it patiently, builds up our characters, purifies our hearts, expands our souls, and makes us more tender and charitable, more worthy to be called the children of God . . . and it is through sorrow and suffering, toil and tribulation, that we gain the education that we come here to acquire and which will make us more like our Father and Mother in heaven. . . .” (Orson F. Whitney as cited in Spencer W. Kimball, Faith Proceeds the Miracle, [1972], 99).

1.23.2011

Random

Oh my, I haven't been keeping up on the blog like I planned to do this week. Oh well, there's always tomorrow, right? There's nothing major to report, but I've still got some fun stuff to share! First and foremost, Chloe has slept well for three nights in a row! That's a trend, people! Woo hoo! The dark circles under my eyes have receded from my chin to my lips, and I'm hoping to be back to feeling almost normal soon! Yay! This means the slight changes we made in her seizure meds and tummy meds are helping.... She's more comfortable and able to sleep at night. Well, she still wakes up 3-4 times a night, but that's our normal, so we are HAPPY!!!

On that happy note, are you ready for some cuteness? You got it!

We went to dinner and boutique shopping with my parents the other night, and check out the CUTE glasses we found for Chloe to pose in! Oh she is just so cute. I heart her!



I went to lunch with my pal, Jamie, one day this week. I had to snag some pix of her cute kiddos and then I had to share them with all of you because they were just TOO CUTE to keep to myself!



Mason & Sadie


Mason & Avery

See what I mean? You're welcome :O)

Oh, and I'm reading the BEST book right now! I highly recommend it. It's told from a dog's perspective -- this dog is hilarious, obsessed with opposable thumbs and incredibly insightful. You will laugh, you will cry, you will think deeply about life and relationships. Sigh. I love it! Almost as much as the FREE kindle app on my phone where I read it.




Speaking of phone apps, I had to share how excited I am about the app we are using for Chloe - Tap to Talk. This app is perfect for special needs children, and probably many special needs adults. It is FREE (I'm truly infatuated free apps right now, can you tell?) It works as a very basic communication tool -- which is PERFECT for her right now! There are categories like food, play, emotions, etc. I go into the categories, then if I think she's hungry, I ask her to point at the picture of what she wants. When she taps a picture, a voice says, "I want an apple, please," or whatever it was that she chose. She has already gotten better at accurate pointing and decision making since we started using this app just a week ago.... There's room for improvement for sure, but I'm so proud of her and thrilled to see what the future brings! Her inability to communicate is without question the most challenging issue for both of us, so to find a tool that will help in that area makes me just want to, well... raise the roof! (Mock if you must, but I'm just a roof-raisin' kind o' gal, ok?) We hope to get her the non-Apple version of an iPad for her birthday (I'm anti-Apple right now. Don't get me started.) In the meantime, we're going to keep honing her skills on this little guy so she'll be ready to roll with a more advanced augmentative communication app in a few months.

Align Left


Here are Chloe's other favorite apps. I thought I'd share them because they meet the double F requirements: Free and Fabulous! They aren't specifically geared to special needs children.... I'm sure these apps would appeal to most kiddos Chloe's age.


The Talking Huggable app is probably her favorite one. He giggles when you tickle him. He gives high five. He farts rainbows. Really, does it get any better than that? Not for Chloe.




Talkable Huggable does have some competition with the Kids Piano Lite app. No accuracy required.... Chloe just smacks the screen and the little duck plays music! Fab!





Some other apps she enjoys are KidozTV, Yo Gabba Gabba! Songs, Happy Flash Cards, and Sesame Street Songs. With the help of these little guys, Chloe is always entertained!




She just loves short videos, especially ones with music, so we also like to search for fun things on You Tube. This is a song I found the other day and Chloe. LOVED. it! I love it too, so we play it several times a day. Chloe just kicks and squeals every time she hears it! I dare you not to love this video and to not laugh when the bird family starts dancing in their nest.




And good luck getting that tune out of your head.... Yeah, it's not gonna happen. haha - You're welcome!

1.16.2011

A Reason ~4~ Celebration!

Today we celebrated Izzy's 4th birthday (Chloe's cousin and BFF).


Izzy made a wish on her cupcakes (she told me later that her wish was that Justin Bieber would call her. LOL!)



Chloe doesn't dig Justin Bieber so much, but she did love the cupcakes!!!



Justin Bieber didn't make a call, BUT look what Chloe got Izzy! Justin Bieber stickers!!!! I caught Izzy giving one of them a kiss.


Chloe had to stick with kisses from her daddy. Cute!


Chloe was ALL smiles, what a fun night!


Happy Birthday, sweet Izzy girl! We love you!!! xo

(sorry for the Justin Bieber soundtrack, but it's for Izz ;)

1.13.2011

Still Here

I just wanted to let the blogging world know that we're still alive. We've just not been functioning at full throttle like we usually do because Chloe is NOT sleeping, which leaves Oby and I exhausted and lazy during the day. We barely have enough energy to do the bare minimum: shower, work, eat, and play Angry Birds. So that doesn't leave much time for taking pictures of Chloe doing cute things and then blogging about it. We believe when the weather is crazy like it has been lately that it causes her brain to go a little haywire (her neurologist says it has something to do with barometric pressure change? I dunno). She's not having actual seizures, but just seizure-like activity. Anyway, we've upped her meds a titch and are crossing our fingers that all will be back to "normal" in no time.

Oh, I forgot that I did take a picture the other morning because a) I loved Chloe's sweater and wanted to document how adorable she looked in it; and b) Chloe was in an extra happy, giggly, sweet, funny mood that morning because she was so excited to go to school and I wanted to remember everything about that moment. The lighting was terrible and my camera is lame, but I think you get the idea.


Also I wanted to let my blogging peeps know that I am checking all your blogs every time you update, even though I'm not leaving comments much these days. I've been using Google Reader ever since I got my smart phone a couple weeks ago because it is a much easier and more efficient way to keep up with everyone's blogs while I'm at work. (I need to clarify, in case my boss is reading, that I'm checking those blogs while I'm on a "fifteen minute" break! lol) But either I can't leave comments while I'm on Google Reader or I'm too tired and/or incompetent to figure out how to do it. So if you're a Google Reader extraordinaire, please leave a comment and let me know what the deal is.

Also, I wanted to share something with you, my blogging friends, because you're awesome AND because I'M awesome. lol! Also I'm delirious while I'm typing this, can you tell? ANYWAY.... I made a recipe book for my mom and mother-in-law for Christmas. I think the recipes are pretty darn fantastic and the recipe cards are pretty darn cute. So I uploaded them to share with whoever might want to have some new recipes. 90% of the recipes are tried and true favorites of mine, my mom's or my mother-in-law's. The other 10% are some that sound like they would be really super delicious so I decided to include them. Anywho, click the link below if you want to check them out.

Tantalize Your Taste Buds By Clicking Here

(My top 3 main dishes to try first:
Creamy Chicken Taquitos, Chili Verde & French Dip
The dessert to give a whirl is Dump Cake. SO yummy!)


That's it for now. Pray that sleep and sanity come my way soon! Maybe when I'm less tired, I'll have the energy to share some things that have happened this week while I've been so out of it from utter exhaustion. A few hints of what's to come: "It's all jammed up!" centaurs, a fun game that I "suck" at, and.... what I'd like to call the morning I got pulled over for doing about 100 things wrong, then my secrets to getting out of a ticket, then being rescued by the same cop 5 minutes later when I locked my keys in the car. Oh, this is good stuff for anyone who may want to mock me for years to come. But I love a cliffhanger, so I'm off. Peace out world.

p.s. Listen to the song that's playing because I think it's kinda fantastic. Because let's be honest -- I have fantastic taste in two things: music and men. Also I love the word fantastic lately, but not as much as I love Angry Birds. The end.

1.05.2011

An Invitation to *Wink*

Imagine yourself pregnant. You're expecting a sweet little bundle of joy with ten tiny fingers and ten tiny toes. You go in for the ultrasound and you're told your baby very well may not be born alive. And that if your baby is born alive, he most likely will not live long.

And then he is born alive.... with ten tiny fingers and ten tiny toes.... plus one eye and one amazing spirit....


Miraculously he lives long enough that you get to take him home where he will stay on hospice care because you are told he will not live long.

And then he lives. He lives 6 days, then 6 months.... He lives so long that eventually you take him off hospice care. You love him. He grows. He touches you in ways you couldn't imagine.

And he lives to celebrate his 6th birthday.


This is what my friend April is experiencing this week. Her Caleb is turning SIX!

She has a special request of everyone who wants to participate in Caleb's birthday wish, but before I tell you about that, I want to share just a little lesson that Caleb taught me.

Caleb's story was one of the very first ones I shared on the kidz blog. His story touched me so profoundly that I spent the better part of two days reading every single post on his blog because I just couldn't get enough of Caleb and his little lessons and his special mom and her little lessons. Chloe couldn't get enough either! She would smile and squeal in excitement every time she saw a picture of Caleb on the computer screen. And so I all but stalked them down because I knew we simply had to be friends. I didn't actually stalk them, people, sheesh! With permission, I met up with April once when Caleb was in the hospital, then since then we've had a few special lunches and never miss each others' blog posts.

Wow. I am wordy, aren't I?!?! TMI all the way. Let me get to point.

So the first day I met Caleb was a little over a year ago. I had a specific issue on my mind that I had been fretting over for weeks and praying about for just as long. I couldn't let this issue go and didn't know what to do about it.

Then I met Caleb.

The issue quite simply disappeared. Just being around Caleb touched me so much. It was like his heart reached out and touched mine and told me that the answer was love. And when I put love into the equation, the issue was resolved. Love was the answer.

Love is the answer. When we strip away all the complexities of the world, when we really get at the root of each of us -- the simplest most inner parts -- all that really matters is that we can love and be loved. That is what Caleb teaches me.

He is a little wink from heaven that reminds us to love and let everything else go.

So now to a special Birthday request from Caleb's mom, April.....


~~~~~

Caleb celebrates his 6th birthday this week!
My little miracle turns 6!
He's old enough to be in kindergarten!
He has 2 wiggly front teeth!


To an outsider looking in, his physical capabilities haven't changed much since he was a baby.
His body isn't able to hold his head, to sit or to stand.
His mouth doesn't know how to eat.
He needs help to breathe.
His eyes don't always see.
His muscles need help to stretch and reach.
He loves to be held.


Yet...
insiders know


Caleb lifts
His smile radiates
He breathes hope
He winks
He reaches out
He holds us


Caleb loves. Really loves.
His little wink reminds us every day that love is his mission.
So this year Caleb has a special birthday wish for each of you.





WINK





Find a way to love someone. Really love someone.





*lift* smile* hope* wink*
*reach out* hold*





If you'd like to take the challenge, leave us a comment telling us where you're from - then spread the word! Let's see if we can share a Wink around the World for my little boy who has never uttered a word, yet who says so much- with a little wink.

~~~~~

I'm going to reach out and wink..... Are you???